I have just explained part of my situation as I understand it to one of the other patients.  She has confirmed that she has been aware of things on the television reflecting us and that it has only been during this admission and had never happened to her before.  I told her I had had it for 16 years.

I’m writing this in Word at the moment, before I go out.  It is easier as it gives me a degree of privacy I can’t get outside.  I find myself wishing I had done this before, because I am feeling as if my head is beginning to calm down and I am becoming less afraid and disturbed by noises outside my room. I suppose the reason I haven’t is because of the way I was approached before by Alison, the ward manager, when she expressed concern over ‘what I was using my laptop for’.  I have been afraid I might have it taken away.

What has happened today?  To start with they told me that my review would be on Friday and not tomorrow, as I had been told by Dr Fahy’s new SHO last Friday that it would take place this Friday and that medication was definitely going to happen following the review.  That was how I understood it.  Today they told me the review would be on Friday but that medication was written up to start tomorrow, Wednesday.  I had thought it was good news that the review was going to be on Friday because as I understood it, medication was going to start again then, when I had had a chance to re-present the reasons for rescinding the section.  Before I have always assumed that waiting for the tribunal was all I could do, but this time has been different.  Because the section 3 I was under for a few weeks from May was rescinded before tribunal I realised that I could argue for it to be rescinded from day one and that waiting for the tribunal is not my only hope.

When they told me that the review would be on Friday but that medication was going to start again tomorrow I felt really upset and I said ‘this is an assault.  If the worst comes to the worst I’m going to phone a radio station’.  Anyway, later they said the staff team had talked about it and that they were going to recommend that medication be delayed until after the review, but that it was Dr Jaffur’s decision (I’m not sure of the spelling).  I was told that Dr Jaffur was away today and might be away tomorrow as well.  I spoke to my advocate who told me that she had phoned the ward last week and been told I was not on the unit, whereas the truth was that I had no leave, except Section 17 worded that I had no leave except for medical emergencies, which I have never received before.  That isn’t leave.  An emergency has to receive attention by law.  At that point I had already not eaten all weekend except for one sandwich and a few bite size shreddies.  During the weekend they decided they wanted to take any food I had out of my room, I suppose to put pressure on me to come out of my room.  But the fact was that at the time they wanted to do that I had no food.  They didn’t take great pains to find out why I wasn’t coming out for food (they knew about harassment and stuff which they keep insisting isn’t happening and that they have seen no evidence of).  The point is, I had no leave at all last week and never left the ward, but my advocate was told I was not on the unit when she phoned.  At that point the Section 3 was back in place and seeing her would have helped me.  That was probably the day she phoned to say she wouldn’t be available for the scheduled review on the Friday and left a message for me which was not passed on.

Anyway, later today they put the review which they had told me was going to happen on Friday back to tomorrow, after telling both me and my advocate that it was going to happen on Friday at a time I can’t remember now.  I found this out when my advocate phoned me on my mobile and left a message for me to this effect saying that I knew and had agreed to it.  I think this must have come from Dr Fahy’s new SHO who came to my room to engage me in a conversation about times, when I had just realised that I was being kept spinning and not allowed to stop as people kept coming wanting to discuss one piece of conflicting information after another.  I told her that I thought that was what my key nurse was for, to pass on the decision rather than different people keep coming to me with conflicting information and trying to get me involved with the conversations.  I have found it exhausting, and this is not the first time it has happened.  She did not tell me this had been a definite change and I heard it from my advocate who said she had been told I had agreed to it.  They told me Dr Jaffur was not going to be available on Friday.

I refused medication as soon as it was offered to me the first time Monday last week, on the grounds that this trust, according to its literature, does not tolerate fear and intimidation, and that this was the effect of what they wanted to do to me.  They told me it could be enforced but I argued calmly and assertively that although it could be, it didn’t have to be.  Eventually they accepted that and my nurse told me that it would be discussed again at review.  I had been told in London that you can refuse until the next review so I was fairly confident.  I had tried to say that to them before though and they had pushed it through anyway, not acknowledging the validity of what I was saying.  I suppose all the manoeuvring and manipulation today has been because that is the legal position and because I said it would be an assault to go ahead with medication before review and that if the worst came to the worst I would call a radio station.  But how many other people do not win this fight?  Every time I show signs of relaxed and healthy communication people start getting uncomfortable or looking cross or disapproving.  I am really feeling bullied and have been for ages.  Every time I speak the nurses copy what they hear.  I said that to the other patient I have mentioned and she said she had noticed it happening to me.  It is either the smile offensive or the snoot offensive and every time I open my mouth they push me and keep pushing me for a bit more, or talk over me, sometimes deliberately scrambling their own speech and being completely provocative and outrageous.

Someone on Radio 4 today mentioned ‘ad hominems’, a personal attack in an argument, and I thought about that in the context of all the times people have talked about illness and medication every time I have felt strong and hopeful in communication.  Yesterday Alison told me she had seen no evidence of harassment and she said she thinks I misinterpret things a lot.  I thought afterwards that that would be like someone who didn’t speak a language telling someone who did that they were getting it wrong.  She doesn’t see all the links that I see because she is not me and doesn’t have complete access to everything in my mind and memory that makes it understandable to me.  I told the other patient about it today because she came out of her review angry and I realised how powerless she must be feeling so I decided she was entitled to know that she wasn’t mistaken about the things she was seeing.

I can’t remember if I said in my last post that I have submitted the same complaint 3 times via the email address given on the website for the hospital and that it was supposed to have been answered within 3 days.  Today, 13 days later, Alison has received it and offered me an ‘opportunity’ to talk about it.  At the time I was flustered and wanted to use my leave and said so, saying it was now 13 days on and this was now my time and I wanted to take it, but also that the hospital has already broken its side of the agreement and that I believed the way forward now was to talk to my advocate about it. This is something her approach to me did not acknowledge.  It feels almost as if all this stuff is now being presented to me thinking they can get me to co-operate in the hope that my section will be rescinded and medication become a non-issue.  It’s a complaint about the night when staff came into my room and turned the light on at 4.30 in the morning and continued to be unruly and I reacted in anger and desperation because of that and previous broken nights through angry door slamming that I had said would make me ill if it didn’t stop, and rather than leave me alone when I said I just wanted to be left alone to sleep they kept going, one of them with her foot in the door, and escalated it to the point that, even though I was informal, they had me medicated.  The next morning the same team turned the light on at 3 am, no explanations, apologies or anything.  The first time, even though I eventually said please and was beside myself with desperation because they wouldn’t just go and let me sleep, they kept going.  Then Alison yesterday was talking about me needing to deal with this thing with Errol, who was involved in that, and it is like telling someone they need to make peace with a person in authority over them who has raped them.  They seem to be contriving to make me feel emotionally and relationally obligated here.

On the night before I tried to discharge myself I stayed out rather than go back and sleep on the ward because I thought if I slept there I might weaken and decide not to discharge myself.  I decided I was in a stronger position because Shelter’s solicitors had told me that I could not make myself intentionally homeless from a hospital.  I spent the night in a hotel room and the next morning I turned on BBC news to see all this stuff about the Home Office wanting to take away the embassy status of the building where Julian Assange has taken refuge, so they could arrest him.  This kind of coincidence has happened to me before, and as I said in my last post, when I went back and they wouldn’t let me go, in spite of having told me after the first interview that I could go and then changing their minds, police helicopters were flying over the building.  Last night I thought that the only thing that made sense to me was that the authorities thought I had absconded (I didn’t know I could do such a thing as an informal patient, but the police were looking for me, I discovered when I was able to use my phone again to get the messages – the battery had run out because of a long conversation with Shelter’s solicitor and I didn’t have the charger, that all has to happen in the office) and that the right way to deal with it was to arrest Julian Assange.  I thought they must have thought that I was going to go back to Occupy or to the Ecuadorian Embassy, whereas actually my first intention was to go back to Housing Aid and get myself rehoused.  But when I saw that on the news I wanted to go to London.  I felt helped by the timing of the first set of leaks that came from Wikileaks.  I have written elsewhere on this blog about Julian Assange and what I thought about things being reported around him, for what that writing was worth, and I feel it can’t have been much because everything I said must have been obvious to any good lawyer, and they also would have known about loopholes and things I couldn’t possibly know about.  I think most things I write are a bit silly at best and that I shouldn’t think too much of myself because of them.  But if I am right in my interpretation of this situation I don’t understand why it can have ben seen as so important that they wanted to take away the embassy status of the building so they could arrest Julian Assange.

They have been saying that they have to extradite him to Sweden to answer charges there, completely failing to acknowledge the truth that he had always co-operated with them freely so talking about extradition in his case is cause for him to be concerned for his safety.  He has always co-operated with the inquiry and the process.  Maybe they want us to forget that so they can call him, as I heard someone say on the radio recently, a stupid, self-regarding idiot, or something like that.  I think it is likely that that description might be more accurately applied to me.  By the way, there is a place in Ecuador called Quito, it has been in Radio 4 news this week.  I thought it was the capital but a member of staff said it isn’t. But I used to live in Kitto Road, at my last London address.  I feel as if I am being wretchedly ungrateful for all the protection which is being offered and exercised towards me by all my various stalkers and hackers, state and otherwise.

My advocate asked me about 2nd opinion doctors and I told her that the doctor involved in the final assessment for a Section 3 hadn’t asked anything situation-specific and had wanted to know my life story, which  thought was not good enough.  She agreed with me, that he was not there to get my life story.  Also he kept smiling at me as if he understood what I was talking about, so eventually I asked him if he understood and he said no, and when I said that he was smilingas if he did, he said he was smiling to encourage me.  I am wondering how many other such situations have been similarly misunderstood.

They keep talking as if I am going to be at the hospital a long time and keep saying they will see me next time they are on, which in my key nurse’s case is a week and a half.  It is exhausting me.

There is a right to silence.  There is also a right to not recognise any relational responsibility when those who are trying to make you feel it are in power over you in a way which allows them to impose themselves on you physically against your will if you defer to them and allow them to go unchallenged.

In the first place they asked me what I would do if I wasn’t sectioned and said my answer might affect their decision.  I told them to make their decision and then I would make mine, at the assessment.  But last week in the review I didn’t attend because the advocate I had been expecting wasn’t there I felt completely happy and relaxed and in my right mind when I asked the review nurse to tell them I would stay until I was rehoused if they wanted me to but that I wanted to come off my section and I didn’t want medication, but they were not interested in that and took the control back and left me feeling insecure and unhappy again.

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