Tag Archive: Mental Health Act


Mental Health Act Tribunal Tomorrow

My Mental Health Act Tribunal is scheduled for 10.30 am tomorrow. I have read the doctor’s report. It is full of mistakes, lies, misrepresentations, alien ways of dealing with things. One of the things it says is that there is a documented incident of me having tried to harm someone. I don’t think he brought that up with me in any of our conversations and I don’t know what he is referring to. I have never tried to harm anyone, ever. I think the worst thing I have ever tried to do when I was really upset was snatch a Church leader’s glasses off his face and break them. I failed, there was a row of chairs between us. The nurses told me I should complain if there are any problems, which I have and been told they will try and stop them and this has had results sometimes. But I told them I was reticent about complaining because it is used against me and my psychiatrist has used it against me in his report, even though the person responsible for dealing with the complaint was very understanding and on one occasion told me that she had had about 20 complaints about the same thing.

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Angel of Light

The Bible says that the devil can appear as an angel of light.  I said that this morning meaning psychiatric staff, but obviously I am aware that it can have as many applications as people want to give it.  So let’s not go there. Maybe for me the biggest angel of false light is that which says ‘it’s nothing to do with me’.  Perhaps a twin would be ‘the experts must be right’.

I was thinking and saying tonight, 16th August, that I can’t understand how someone can, in good conscience, take a job which empowers them to commit acts that in other contexts would be viewed as assault.  I find it appalling that someone can assault you one day and, without apologising or anything, act as if nothing has happened afterwards and put it down to general relationship problems on the part of the patient, or mental illness, if the patient doesn’t go along with that.  If they did at home what they do to us here they might not have a relationship to go back to.  I would certainly find it hard to consider having them in my home,  Do they apologise for major failings at home?  If so, why don’t they apologise to us?  Are they trying to kid us that they really think their behaviour is an acceptable part of a normal relationship, or that they think we think it is, all of us, and that we wouldn’t want or expect an apology?  When Jim grabbed me I wasn’t putting myself or anyone else at risk.  So it really was an assault.  He wasn’t the only one involved.  I’m worried about the reasons for having me on a Section 3 as well, that while I am not a danger to myself or anyone else I suffer from a mental illness of a nature and degree which requires treatment in hospital.  Being mistaken about the reasons for harassment or violence or antisocial behaviour from others does not, in my mind, constitute a mental illness.  And if people believe I am not mistaken all the more reason for them to say, unilaterally and without any assurance of my good will, that they have made a mistake.  From the bits I’ve seen and the much that I’ve heard, we are all over the broadcast media, and it isn’t because of me.  It was happening before I started blogging about them.  It’s been happening to me, to my knowledge, for nearly 18 years.

Saturday 10.08.2013

Well, what a day, and I don’t mind telling you.  I’m sitting in a hotel restaurant drinking a non-alcoholic Mojito, because I wanted to avoid a certain HCA at dinner who keeps insinuating herself on me.  She would probably have been serving.  Today she was playing the ‘how have I upset you today‘ game, as if it wasn’t obvious.  She still has not, to my knowledge, admitted swearing at me etc.  Everything she does to me is out of bounds.  She has a daughter who sometimes works on the ward as well, in the same capacity.  I wouldn’t have thought that was good practice. There is another mother and daughter among the domestics, and a twin set also among the domestics.  I don’t think any of that is OK but certainly I don’t think it is OK to have two HCAs on the same ward from the same family.  That is called nepotism.  How can that be professional?

Police came this afternoon.  Wasn’t really after a statement.  One of the first things he did was accuse me of spitting, as if dealing with a playground fight instead of the complaint of someone who has been physically assaulted.  It was like we have to sort it out.  He wanted to know why I didn’t want to talk to Kerry with him there.  But she lied, apparently, according to him.  She said I assaulted her and she kicked me in self defense, and nothing could be further from the truth.  I never touched her and didn’t move as she came at me.  Apparently the witness has been reported as a missing person.  I told him I was afraid she might have a gang behind her or something but he was insistent she did not.

Went out for breakfast this morning with another patient, then went with her to Boots and Clarks.  Went to the Alley Cafe for a sandwich and a vegan version of Guinness.  Sat in the Market Square for a bit watching the fairground rides and the pigeons.  Passed a lot of police, including PCSOs.  God loves police people, the same as He loves the rest of us.  It’s just their misbehaviour affects people more.  I passed a PCSO this evening and wanted to go and thank him for making himself vulnerable to protect us.  Passed a lot of boisterous and loud people and decided they weren’t all drunk and/or disorderly.  There is a hen night to the right of me.  I feel as if I am raining on their parade, doing this.

Would people run from the police so much if they didn’t expect sass and force?  Don’t know.  Feel as if I need to come back into line with ‘the majority of law abiding people’.  The occasional bit of bad behaviour, inefficiency and violence doesn’t make a bad cop, does it?  Unless I am its victim.  I am very tired again.  Seeing hospital as home.  Too much over-familiarity coupled with fear and anger for straight and appropriate thinking and perception.  I feel really upset and disorientated.  My section ends on 16th August.  I’m hoping they don’t renew it.  If they do it will be for a year this time.  It really is an abusive atmosphere, I’m not wrong.  It takes its own rightness for granted and has too many physical powers, not to say illegality as well.

Who Do You Think YOU Are?

I was told this morning that my key nurse has been changed.  i said I was a bit disappointed that what I had said in anger had been so quickly acted on without talking to me about it.  I was told it was an overall decision that couldn’t be gone into that much.  I wonder if all the changes I have had over the last 17 years have been as a result of decisions of the same nature.

I found out because I asked to speak to my new key nurse not knowing she was my new key nurse.  I wanted to tell her that while I didn’t want to be churlish about not seeing my psychiatrist today, if the only reason she wanted to see me was because I had requested a sleeping tablet to be prescribed for me I had rather leave it.  I said that I was concerned that I had had no structured support since I was assaulted and no one had really asked how I was in connection with it.  I said that I had even been left to myself to decide whether or not I wanted to involve the police, and that since I am meant to be mentally ill I might not be in the best state of mind to decide for myself, and that it had happened on their premises and the woman was in their care, not mine, and that I am also in their care.  I said this is not a one off thing and that I have said things of this nature are happening to me in the community but what I have said has been put down to schizophrenia.  I said I didn’t want to talk to my psychiatrist hoping and believing that she might soften and modify her position in light of what has happened and that the effort should not be having to come from me putting myself in that supplicatory position with an authority figure who might remain distressingly adamant.  I said it should be being treated as an emergency, extraordinary event and that there should be some form of trauma counselling.  I said there had been a witness, as it seemed that this was not known, I was being told that I had said it happened and they had seen the bruising, but it is far too casual.  I’m hoping that on Saturday, when the police come, they will be wanting to take a swab or whatever it is called from my clothing to establish a shoe came into contact with my stomach.  Dr Bradshaw was in the office a couple of days ago when I mentioned it, but her only concern appeared to be that she should see me about the sleeping tablet.  On reflection, she might have been concerned but be trying to maintain confidentiality, but it seems to me to have been a little too opaque.  But perhaps I should go back for the review, I don’t know.

I was shocked and didn’t believe it when my nurse told me there was no provision for trauma counselling as such.  She said I was seeing my psychologist anyway and didn’t seem to pick up that this was a separate event and should have been treated as an emergency.  It also didn’t seem to make an impression that I said the next time I am due to see him is on the 27th as he is on leave for 2 weeks.  She said this is an acute ward and things like this happen, I said yes, but I’m a person, not theory.

I asked her as well, as an adult, that since in any other abusive situation I would be able to take myself out of it, how did it stand in law under a section 3 when I am being abused in an environment where I am supposed to be receiving care, what were my rights.  She asked if I meant being moved to another ward and I said no, there is no guarantee that it won’t happen there as well.  In fact as far as both staff and patients are concerned it has always happened wherever I have been.  I think my experience as a patient in this setting is not unusual.

I can’t afford to keep going out for something to eat but I don’t like having meals there anymore, I feel harassed and intimidated.  Kerry went to the hatch effing and shitting and no one pulled her up about it.  If it had been me it would have been different.  I’m feeling too much guilt about a supposed lack of gratitude on my part when all I really have here, apart from a duty not to be abusive without provocation, when It just comes out sometimes because I am upset and tired and stupid, is rights, a right to protection, a right to respect, which includes a right to be believed, in my opinion . . . .

Update 30.06.2013

Last night the light was turned on in my bedroom at about 2-3 am.  I was asleep and it woke me up and I was very upset and angry.  They told me they had to do it, I said they didn’t and it had only happened about 12 times in 17 years.  They told me to stop shouting.  I said at some point yesterday that if people in our position being treated as we are start shouting in anger and hysteria it should be understandable, but that when carers shout at us it is not acceptable and it is not our fault.  About a week or so ago Sh___n, the nurse who pushed the patient out of her way with her foot, started saying something I have had them say several times down the years, that if you give respect you get respect.  When they have said that they have been talking about patients who don’t get respect because they don’t give it.  I said that is OK among equals but that it is a playground rule, not OK for nurses and doctors and domestics to use against patients.  If we supposedly have mental health problems and are having things done to us we don’t want and being abused as well, we might find it hard to be respectful in our state of fear, anger and hysteria.  Yesterday morning K__h the domestic hammered on my door and presented herself in my room arms up and talking loudly.  I told her that when people hammer on my door it shocks me so much that I don’t answer them.  I asked her why she couldn’t knock quietly like Jim did when he knocked on my door.  She said she was sorry she couldn’t change the way she knocked, it was just her, and I said she could if she knew it was upsetting people.  She grabbed L___a who was passing and asked her to come in for support, and she stood in my room and she said my music was nice and they were having a smiley conversation with each other with Linda standing there exuding security guard and smiles.  I said they wanted me to change but didn’t want to change themselves.  I was also angry that they were in my space presuming to say that my music was nice and I didn’t like the fact that they were doing that.  A few weeks ago Sh___n knocked on my door and I was trying to insist on boundaries with her because she had offended me before.  She asked me something, I said no thanks or words to that effect, and she started commenting on my radio, after having been insistent on her own agenda towards me already.  She asked me where I had bought it from and I said I couldn’t remember and it was obvious I didn’t want to talk to her.  She asked if she could have a look and I said no, but she insisted on coming into my room anyway and touching my radio and ran out.  I tried to remonstrate with her but she blanked me and went to another room then told me she was with another patient.  To me it was about staff respecting my boundaries, as so many issues I have had here have been.  I just thought of the patients’ charter and looked it up as I have been meaning to for a while.  I looked at the section on respect and it said you should be asked whether you want to be called by your first or last name and should have your choice respected.  I was offered that choice once on a general ward, I’ve never been offered it on a psychiatric ward.  In London I fought unsuccessfully for years to have them call me Sue rather than Susan, and ended up really confused about myself and what I called myself, to the extent that I felt I had betrayed my parents by shortening the name they had given me.  I started to feel that Susan was the real me and Sue a false me and I felt superficial and artificial for having called myself Sue for so many years.  I felt ashamed for having decided to call myself Sue and sometimes I still do.  When I insist on it it sometimes feels as if my name is nothing to do with me and nothing I say about anything matters or is reliable.  I’ve often objected here to being called love, duck, darling, dear and sweetheart but no one takes any notice.  They say that is the way they are and they do it with everyone.  Sometimes they seem to be quite aggressive and purposeful in doing so.  There are two of us who sometimes object, that I know of.  When I was in London I fought for years just to be called Sue, not Susan.  I said once or twice I would like to be called Miss Barnett.  No one took any notice.  It’s about boundaries and presumption.  They all assume and presume so much, and for patients in my category that damages lives.  They make decisions with legal implications in my life.  And recently, as I have said, there has been deliberate dishonesty and maybe illegality.  In fact I would say there is a lot of illegality.  They wave section papers at us as if that gives them absolute power, but as well as the legal power of these papers is all the illegal abuse they get away with.  ‘You have to this, that and the other because you are on a section’.  Is that really true?  Do I really have to have my life subjected repeatedly to people who deliberately abuse and lie and misrepresent apart from the powers they have under the mental health act?  Not only that, but some of them seem just plain stupid and thick and insensitive.  Yet they say I have no insight.  They don’t like the insights I have.

Apart from the light being turned on last night (it was the night before as well) There were doors slamming through the night and a lot of shouting almost non-stop between 6 am and 9 am this morning, after which it went strangely silent for quite a long time.  I noticed that when my key nurse had been in charge of the night shift recently there had been no disruptions that I had been aware of for those three nights and we had all seemed to have a peaceful night.  There were no rude awakenings in the mornings either.

I remarked to someone last night that in just the same way that we don’t have to be available to everyone outside, we also don’t have to be available to everyone in hospital either, that healthy people choose who they are going to be available to.  Yet some of the nurses get rude, offended and giggly if you are not making yourself relationally available to them whenever you meet them.  It is disrespectful and not recognising my right to privacy and choice about the relationships I choose to engage with.  They won’t let me be an ordinary person, they are demanding from me all the time, some of them.  I went into dinner on Friday trying to think about and envision meetings I have planned with other staff next week, and rather than leave my head space alone they were smiling at me insistently and when I got annoyed the Eastern European girl who was on started running around and giggling and touching surfaces as I have seen so often since this mental health thing started for me.  They can’t leave me alone.  They won’t request a conversation but the keep grabbing at me and imposing on me psychologically.  It is the same for others as well, they have said so.  To me there is something wrong with that.

I was talking about doing my laundry last night with another patient.  There is a laundry service that your washing has to be sent to and you get it back in 2 or 3 days, but people have said that things go missing so I decided to get mine done at the launderette.  She asked me if it had been OK and I said yes, everything had come out that needed to, and a nurse passing by started uncomfortably.  If that had been one of us and we had said something we would have been told that no, the other person was just talking about washing and why did we think otherwise?  I noticed that all the staff were walking with security guard body language and suddenly ‘realised’ this was deliberate.  Inwardly I turned away from them and when one of them passed me I stayed turned away and not acknowledging her and her body language changed and she looked guilty.  On another occasion she had walked past me a few weeks ago and when she noticed me she looked as if she was going to smile and she literally wiped it off her face and ignored me, continuing with the same hard body language.  They swan and glide and make annoyed or blank faces.  They pitch their hardness against my softness.  It leaves me feeling like a confused and angry mess.

Last night one of the other patients said it was illegal for them to keep her there.  She is a Christian.  The nurse in charge, S___a, came quickly out of the clinic room and looked at her, afraid and uncomfortable.  I encountered my psychiatrist in the corridor during the week.  She rushed past me uncomfortably.  The SHO of another psychiatrist looked redfaced and upset.  I don’t know what is going on but it feels as if it has to be good, from my perspective.  Having said that, I had the meeting with the SHO last Monday and was told he was waiting for the psychologist’s report before a decision was made.  I would have expected on to be made by now, it has normally been a same day decision and action, but no one has told me anything, if there is anything to tell.  I feel as if they are withholding it from me deliberately to keep me on tenterhooks.

I know these things are happening, I still have problems settling on why and what my responsibility is with it.  A lot of the time I feel as if they are desperate and I am wrong and unmerciful.  I told my psychologist that last week.

In Brief

It’s a while since I have been able to update my blog.  We are not allowed computers on the ward.  It was in brief when I started. 

I absconded from Macmillan Close and was 12 days in London.  The last 4 of those were spent falling asleep upright anywhere and everywhere because I couldn’t afford a bed.  When the police eventually picked me up after many close opportunities I was taken to a hospital in London where I was put behind the nursing station and alternately I was told 4 times I could or couldn’t have my door closed.  The nurses were badly behaved all the time I was there, when in the evening I finally got my meal and tried to close the door for privacy a nurse became aggressive and said she would call security.  I was brought back to Nottingham between midnight and 2 am in something which said ambulance outside but was like a police van inside.

When I got to Rowan 2 I was met by two staff, one male and the other female.  I made it clear that night that I didn’t want to get too close to the staff as I was there against my wishes and believed I had a right to protest.

The next day I was lying in bed relaxed, I wasn’t bothered by anything that normally had bothered me, like door slamming and shouting.  Although it was happening it was separate from me and identified it easily as out there and hardly noticed it.  However, during the course of the day 4 groups of nurses woke me to confront me about getting up, and after this happened I realised I was again feeling oppressed by the other noises.  I was afraid of their unreasonableness, and angry.  One of them said it wasn’t fair to the other patients, I said something about care being patient specific and needing sleep.  After 4 confrontations all feelings of safety were undone and any benefit from any sleep I had managed was destroyed.

I haven’t got long to write this so I’m going to try and put in everything I feel relevant but it won’t be particularly ordered.

Today I have an appointment with a Second Opinion Approved Doctor.  The first time he came I was only given 1 ½ hours’ notice and I managed to get it rearranged so I could arrange to have an advocate present.  However, although I am sure that when I phoned the advocacy service last week and left a message on their machine I gave them all the details they needed, when I picked their response up on Friday they wanted me to phone them again with the time.  I’m usually good about giving all necessary details, and even on Friday when I spoke to someone directly she asked me what time it was going to be when I knew I had already told her.  They have a 48 hour call back policy so at the moment I don’t know if I will have an advocate or not.  I am worried about having to go ahead without an advocate because last time he kept interrupting me, said he wanted to ask me 2 questions then after that I could decide whether I wanted another meeting or not, and he asked me if I thought I had an illness and if I thought I needed medication.  I said no to both and he said we wouldn’t need another meeting.  I insisted pointing out he had said it was up to me and that the purpose of the meeting was to do a proper assessment, not just get my opinion of illness and medication.  I was shocked and disturbed by his rudeness and ground shifting and believed it to be deliberate, knowing that even I in his place would not behave as he had.  I shook his hand at the end and he was holding a pencil.  He didn’t even put it in the other hand.

The first meeting I had with my psychiatrist seemed quite friendly and reasonable until I mentioned that my English degree had involved a critical method path of psychoanalysis and reader response.  She looked shocked and nervous, not to say afraid.  In meetings after that she got heavier.  She told me that if I named people in my blog they could or would sue me.  I said good, it’s about time it was made legal not medical.  I’ve thought about it since and thought that must have been deliberate intimidation, as they already have enough to sue me with from before and have threatened it before but have not taken that route.  She often wears a mocking and provocative expression on her face when I am talking to her.  She has told me that because I believe things are happening I need medication, and has said that if I am heard shouting or talking to myself in my room or laughing I will be medicated.  She tried to reinstate a depot the other week.  On the day of the following review my advocate told me that that wouldn’t happen as the paperwork was not up to date and it would be illegal without seeing a SOAD.  I can’t believe she didn’t know that at the time she told me it would be reinstated.  2 or 3 weeks ago she terminated the review because I tried to tell her that what they wanted to do to me filled me with fear and revulsion, and she said she wasn’t prepared to have me speak like that.  She said she wanted to keep it rational.  I have said that when people introduce physical threat as something they believe they have a right to they lose the right to expect reason from the person they are dealing with and to expect to be seen as reasonable themselves.  Recently she has been harassing me, asking me to take just a little medication knowing how I feel about it and that we are waiting for a SOAD.  I have told them that I believe in natural healing, sleep and rest and self-management.  I’ve also said that I am afraid of what they want to do and asked how fear is good for someone’s mental health.  I pointed out that last time I was in London the panel said that in view of my feelings about medication and the fact I had held them for a long time they were not going to force me and were going to end my section, and have said that although Nottingham is a different authority this decision should be taken into account and respected.  This has been ignored.  I am worried that I have heard people here tell me they have been in hospital over a year and up to 3 or 4.  I’ve been in hospital here now since 1st May last year.  I’ve never been in hospital this long before.

I’ve seen a psychologist twice and he has given me the impression he is on my side in things I have said to him, and my key nurse told me as much last week.

I’m on an all women’s ward but we have male staff.  Although I tend to enjoy relating more to the men at the moment I still can’t see why there are male staff on a women’s ward.

One man keeps positioning himself near me and saying ‘My God’.  I have told him I find it offensive but he still does it.

One man, when I had my bedroom door open with a nurse inside one morning, looked straight into my eyes as I was lying in bed with piercing disapproval.  Recently the same man came out of the office and started playfully teasing a patient who interrupts me every time she engages me in conversation and had just done so.  It feels as if they deliberately affirm anyone who gives me a problem.

There is one female nurse who told me that she wished she had a mute button so she could switch me off.  I told her that was verbal abuse and she said she didn’t care.  I said she might not care but I did and thought she should because she had no right to be talking to patients that way.  When I told my psychologist this he said ‘good for you’.  The same woman the next night heard another patient shouting and swearing at me, calling me foul mouthed and evil and saying I should wear a sign round my neck saying I was evil.  She came out of the office and sat in a chair and watched it for about 5 minutes without saying anything.  When the other patient got up and walked away (I hadn’t sworn during the whole conversation), this nurse turned and said to me, ‘See, Sue, nobody likes you’.  I told her she had no right to say that and that it wasn’t true anyway.  She asked me why I had involved her in the conversation in the first place and I said I hadn’t, she had come and sat down, and she told me to F off.  I reported this in a review meeting, it was handed to the ward manager for investigation and I have been told that this nurse denied it happened and the ward manager said she didn’t feel that any of her staff would behave that way.  I had a concert booked one night and I was at breakfast and this nurse was on again.  One of the patients started shouting at me and I said I was tired of her shouting at me and of the nurses letting her.  One of the other nurses on with this nurse, instead of trying to diffuse the situation, made it worse, saying I was rude to nurses.  I was shouting because I was so upset and the nurse who had called me rude threatened me with an injection.  I said it wasn’t going to happen and the nurse who had sworn at me before said to me that I was going to get an injection and that when I did she would be there.  I said she wouldn’t and she said do you want to bet.  When she saw my fear when it was first mentioned she was pleased and laughed, then the first nurse told me I couldn’t go to my concert or go out at all that day and that I was restricted.  This woman has thrown a tantrum several times when she has not wanted a conversation with me, though she started it, and has threatened me twice with an injection when I’ve got upset about it.  Medication has only ever been raised as a foreseeable imposition or threat, never as an offer.  I didn’t go to the concert.  That night the man who keeps saying ‘my God’ around me stood at the end of my corridor singing ‘soldier, solider, won’t you marry me’, and ‘Red red robin’ sounding really upset.  It was two nights after I had been upset because I had been told that a depot was going to be reinstated.  I was saying they were psychological terrorists and rapists.  They just walked around me ignoring me, not offering help or support.  He said ‘bloody hell’ to another nurse and I told him to stop swearing, because they came down on us like a ton of bricks of we swore, and he repeated it.  I was touched by the singing and thought he was going to be on that night, but he wasn’t and I was upset and disappointed.  He was finishing his shift, not starting.  My advocate told me the afternoon staff would have let me go to the concert, but they never tried to communicate that to me.  I was offended by what had happened in the morning and I didn’t want to approach it with them.  I felt it was my own fault that I had missed it for not approaching them.  But I have often felt that they are making me ask for things rather than offering in an attempt to break me, because I have said that I am not playing patient to their doctor nurse and I have a right of protest.  I have missed quite a few meals through a combination of fear of harassment and protest, and in my tribunal the other week one of the members of the panel asked the staff about it in such a way that gave me the impression that they were so cynical about me that they just put missing meals down to a ‘bargaining chip’, that was the terms used.

The day after the missed concert I got to the breakfast hatch 5 minutes before it was supposed to close and it was already closed.  The nurse who swore at me was on and I asked if I could have some breakfast and she gave me a one word answer – ‘no’.  I asked her if she had brought her whip and stilettoes that morning and as I walked away she asked me if I had enjoyed the concert.  As I was trying to answer he she shut the door in my face and I pushed on it to finish my answer to her question, and she suddenly let the door go and I ended up on my back in the kitchen, so I finished my answer from there.  Another nurse threatened to have me removed if I wouldn’t get up but backed off when I said it was illegal if I wasn’t a danger to myself or anyone else.  Eventually she asked me if I wanted breakfast and I told her I had been told I couldn’t have any.  She told me the nurse had said I couldn’t have anything hot, I told her the interchange that had taken place and she said ‘that is what you are hearing’.  I said ‘that is what I am hearing because that is what was said’.  She was trying to put it down to symptoms of mental illness.  I have had this with two other nurses on two different occasions, they refuse to have a normal conversation without putting something they don’t understand down to delusional beliefs.  That’s why I don’t like talking to them.  I talk to other patients, but when I do the nurses interfere with my conversations, start mimicking me, talking loudly over me at intimate points in the conversation, matching my tone of voice to say something in the office.  They have denied that any of this happens, but other patients say it happens as well, and we are all angry.  When my psychiatrist told me I would be medicated if I was heard shouting and slamming doors I said to her that a lot of people feel and act the way I do, and rather than face the fact that the staff might be doing something wrong and need to change, they threaten us with medication on our own in the review, in isolation.  That night I went to bed determined not to let anything come out of my mouth.  I fell asleep and had a nightmare that someone was hammering continuously on my door and I was shouting ‘please stop shouting at me’.  Somewhere between asleep and awake I wasn’t sure if I was actually shouting, and waking up I took myself in hand so that I wouldn’t verbally express the distress of my nightmare.  I felt like a child in an abusive situation who lies quietly in bed as they hear an abuser coming in the hope that if they are really quiet this time it won’t happen, and in fact I have been in that position many times on the ward, but it always does happen, because it is deliberate, but when I say it is happening I am told my belief is a symptom of mental illness.  It’s like a gagging mechanism.  This morning before 6am a man who had been on duty overnight came into the corridor talking loudly and making a sound like throwing up.  That is the kind of wake up we get every morning.  Staff shout, we can’t.  Staff shout at us, and threaten us if we get upset.  If I talk confidently about something I have seen as positive for me that is not ‘treatment’ related, staff nearby laugh in derision.  When they knock on my door they hammer.  They mimic, they walk past ignoring, sometimes with disdain on their faces.  I believe this is an expression of civil war.  Because I made my position clear I feel they have withdrawn service and support and are often deliberately opposing me.  The first time I heard bedding being offered to people I wasn’t offered any.  I had been there about a week.

When I first got there there was a lot of shouting and overt bullying.  I stood up for someone a couple of times.  The shouting has largely turned to boy scout behaviour and uproarious laughter.  A male nurse shouted at a patient outside the office once, went back in and closed the door and everyone in the office laughed loudly.  I thought it was inappropriate.  I have said to my psychiatrist that I don’t want medication and that some people used it for bullying and sadistic pleasure and that it turns into a grotesque theatre of subjugation.  Two nurses have said to me when shouting at me and having threatened me that they will be pleased when I am on medication (taking it for granted it is going to go that way with the SOAD) and that they will be there when I get the injection.  They will also use it verbally and cruelly at other times.  When they first said they wanted to restart the depot I told them I wanted it once a month not once a fortnight, because I know it is available and that I was limiting their access to me.  I have told them that if they force medication on me I won’t co-operate with them over anything else and that it will be an assault.

I was out on leave one evening and a couple of times I was so touched by people’s humanity and vulnerability that I wanted to break down and tell them what was happening.  I didn’t.  But on the way back I thought that I was being roughed up in the name of medicine, and that wanting to break down and tell complete strangers my story was evidence of that.  When I got back on the ward I was upset and told some of the patients what I was thinking.  I got more and more upset until I went to my room and gradually regained control of myself and went quiet.  After I had been quiet for ages I suddenly thought, ‘I’ve got shoe laces in here, and electrical cables.  I could have tried to harm myself, and no one cares to check if I am OK.  This is an acute ward, and they aren’t even checking that I am OK after being upset for ages then going quiet’.  I started shouting that and the male nurse on duty eventually walked past my door and yawned loudly and offensively.  At least, anyone else might have seen it that way, but when I told one of the nurses they said that might be just the way he is and he might not have been meaning to be offensive.  I’ve contacted the police several times since I have been here, including about this incident.  I was given a crime number for this incident.  I’ve heard nothing back.  I have said before and know it is true, that these people can get away with anything and are completely unaccountable because all they have to say is that I am a paranoid schizophrenic and that my perceptions are part of my illness.  I said to a patient the other day when we were talking about having to send our washing away and wait 2 days for its return and I’d been told sometimes things didn’t come back, that I hadn’t expected to be here so long anyway, and a nurse laughed as if it was a funny joke.  The man who says ‘my God’ around me laughed or said something contemptuously when another female patient said she had had enough and was going home.

The staff say things like ‘vain’ and ‘rude’, just throwing the words around, apparently.  They used to say ‘baby’, which seemed to be a stop word, or acted that way anyway.  I confronted it a couple of times and for now it has stopped, more or less.  I hear them talking about other patients by name, gossiping at and after meal times.  I am sure I get the same treatment, and one or two times domestics have had a hard time hiding their outrage at me when I’ve just been relaxed and normal.  On one of these occasions it was followed by an apparently untargeted ‘we all know’, after using the word ‘wee’ which has happened a few times recently.  Patients have started mimicking each other, and one commented that the staff mimicked me a lot, but if I say so it is my mental illness making me think that.  I’ve told my psychologist this and from what he said and my key nurse said, he is on my side.  The person using the word ‘vain’ was a man, and so was the one who angrily and derisively mocked my accent from the office, which I have been told never happened and that the fact I think it did is just more evidence that  need medication.  They look through my slats without speaking and I have said I feel like a lizard at a zoo.  None of this can be good for my mental health.  There are three patients they let shout at me or tear into me in other ways.  They don’t try to stop it or express any concern for me.  I used to like talking to the patients but I have withdrawn a lot now because of staff harassment.

I realised last week that I have been having strong urges to self-harm as a result of all this.  I won’t do anything about them but the urges have been there.  I’ve wanted to cut my hair, even thought about shaving my head.  I’ve wanted to run forks down deep into the flesh on my cheeks.  I’ve thought it would be a good thing if someone would whip me.  The other day I sat upset and rigid in a wooden-armed armchair in the multi-faith room.  I was upset because of something that had been said by a volunteer I had seen as a friend.  I realised I was wanting to self-harm and dissolved the emotion by saying the words quietly out loud as a realisation.  I thought about the electric chair.  I asked myself what would be the worst thing that could happen and I thought I might wet myself and defaecate and fry, but that would be all there was to fear, and it would all be over.  When things first started years ago I used to think a lot that I wanted to go to America and be executed judicially by lethal injection because everything was my fault and if I died everyone else would be free of the problems association with me seemed to bring on them.  Now I am correctly identifying urges of self-harm as a result of what people are doing to me and not my fault.  They don’t need medication, they need a change of situation.  Enforced medication is one of the things that adds to my feelings of hopelessness.

I’ve seen a lot of lookalikes from my present situation on the tv this weekend, and I noticed one woman noticing a lookalike of herself.  It’s the multiplicity and density that makes it unlikely to be coincidence.  I am sure the staff are aware of it and I think they are blaming me.  I have said it isn’t my responsibility to address it as I have been talking about it for years and having it put down to mental illness, and that it is their responsibility to approach me and say they think they might have made a mistake.  I feel I am being harsh and unreasonable, but if they won’t raise it with me and it has been rejected for 17 years . . . I hve said that people who resort to physical assault in the name of medicine have no right to tears around the people they treat that way, but I have started feeling responsible for their emotions and obligated to them.  I think that has been manipulated and what they are expressing at the moment is cruel and puerile cowardice.  I think the same of myself though.  I keep thinking it isn’t about feelings, it is about facts.  Being rude, vain, irritable etc are not evidence of mental illness and a need for medication.  I have been told I am paranoid schizophrenic because I believe that things related to me and my situations appear on the media and that I am being stalked and experiencing vigilantism bordering on and occasionally involving violence.  I see my time in hospital as one of these latter situations.  It is psychologically violent, physical assault.  I have said and meant that it is Nazism and scientific totalitarianism and that it is barbaric and brutal.  I have said I can’t trust people who will operate this way because it is an easy out and I think there is something wrong with them as humans that they cannot or will not see themselves as cruel and unreasonable, especially when someone says that other things help them.  I have said that I don’t want doctors taking serious risks with my physical health without my consent, risks that have been known to put people in wheelchairs as a result of ‘rare’ side effects.  If there is a risk like that, it isn’t right to say it is minimal to a person you are forcing medication on and denying them a right of refusal, while refusing to acknowledge that that person might be one of the people so affected.

I’m also afraid that even if they acknowledge they have been mistaken about this longstanding ‘reason’ for calling me mentally ill, they will shift their ground and insist on calling me mentally ill for other reasons which have arisen as a result of the constant bullying, untruthfulness, misrepresentations, etc, over the years.  I was up one night at 4 am and heard one of the male nurses up the corridor, a constant stream of ‘bastard’.  I have said they are employed to do a job and I have been there on my own time for over a year, but they come down hard on me and others if we swear, although swearing is a part of life.  Enough for now.  Oh yes . . .  My psychiatrist says the expressions on people’s faces don’t mean anything, then sits there with a provocative look on her own face.  A look passed between her and the clerk which knocked me out for the whole tribunal hearing, because I didn’t dare say anything.  I’ve started confronting this, talking about drama training and conveying thought process and feelings through facial expression.  I’ve also said most people disagree with her, and sometimes I have put it stronger than that.  Everything I say is put down to mental illness, everything said about me is used as fuel fir their invalidating, undermining and subjugating theories and decisions.  I have started saying that It is untruthfulness and dishonesty.  I said when first told I would be sued if I named people that it is a humanitarian obligation to name and shame these people, but I haven’t.  Sometimes I have felt guilty that I have protected myself by not writing at the expense of others who need me to speak.  Today I feel as if I am letting myself down and being dishonourable to the staff by writing.  And I’m scared because I’m not going to have an advocate this afternoon.  I have felt it is treated as a sign of weakness and validation of the staff if I don’t write, and also that it is a validation of their position and something they can blame and hate me for if I do write.  I’ve been hoping that if I don’t write they won’t medicate, but I feel they take advantage of my silence and will medicate anyway.  I feel that this strong feeling of certainty and relief that they won’t medicate if I don’t write is a true feeling from God to which I am being disobedient and that by writing I am not trusting God.

Employment And Support Benefit

Without having received the letter I was supposed to receive I have been taken off Income Support and put on Employment and Support Benefit.  In the process I have lost £100, approximately, every two weeks.

In the meantime I am still in hospital, and because I have no Care Co-ordinator or social worker I am still paying about £150 a month for my storage, although I am entitled to have it paid for me under Section 117 of the mental health act, which is concerned with aftercare.  Having been on a Section 3 before this one I am still entitled to aftercare following that.

Obviously something needs to be done about this, but at the moment I am not sure what.  I don’t know if I can get an appointment with the benefits advisor.  I don’t know why I’m not entitled to Income Support anymore.  Until now I have been deemed to have a serious illness, in spite of all my own efforts to get them to re-examine my claim and diagnosis over the years.

I know that, because I know something of what I am going to write, and people’s reasons will vary.  Personally, when this is posted, I will want to throw up, because I don’t think a decent person would post something like this.

I wrote to someone yesterday and asked for help, saying my alternative was to blog it, because the details are sensitive and involve other people and their tragedies, which have already been in the national news headlines.  I am going to be coupling this with my own plight as someone who has been mentioning this kind of thing to my psychiatrists for years and been told it is probably a coincidence.

I keep hearing murders reported on the national radio news (I don’t watch much tv at the moment and if I did I might find even more cause for concern in the images) which have salient details in common with my life, past and present.  Here are three from the last 2 months.  I have been aware of others which I haven’t latched onto in the same way, but now every time a newreader’s tone becomes serious I listen for the details and am sometimes astounded that it has nothing that I can hear to connect it to me.  Very often it has something I can identify as a part of my life.

1.  The hostages killed over a month ago, Franco and Chris.  My name is Sue, I am a Christian.  Chris is often used in this way.  My uncle’s name is Frank.  They were captured on 12 May 2011, my uncle Frank’s birthday, and slaughtered as I thought I was embarking on a new lifestyle temporarily in Wales.  This kind of coincidence has happened before.

2. Dunford and Julie Davison, one new story.  The first vicar I can remember in Bestwood, Nottingham, where I was born, is/was called Dunford.  The girl across the corridor from me in my hall of residence, who is also 50 now, like Julie Davison, is/was called Julie Davie.  Two people connected with my personal life, linked in the same murder news item.  I reported this one to the area police responsible, over the phone, and said I had had a lot of these coincidences in the past.  The next day someone had been arrested, but I have heard nothing myself in response to my call.  I am wondering if they have decided I am an unreliable witness because I have a mental health diagnosis of schizophrenia, based in the first place on my insistence that this was happening.  Patients on a ward are not regarded as reliable witnesses for each other either and their versions of events are not called for.  This is written in the procedural literature.

3.  The latest thing is the Philpot fire in Derbyshire, which has taken the lives of 6 children, all the children the mother had.  I can’t imagine the devastation this poor woman must be feeling.  The last I heard the police were treating it as arson.  Our next door neighbour when I was a child in Nottingham was called Mrs Philpot.

All 3 of these facts are checkable by asking members of my family who have not, to my knowledge, been certified.   So why haven’t I turned to them to back me up?  Good question.  What about someone who does not have family to back them up in this kind of assertion?  Am I just attention seeking?  I am uncomfortable with that question and its possible answers.

I started listening to Osho teaching on Napster a few years ago.  Shortly after that there was a bombing close to an Osho ashram.  There is much more I can’t remember at the moment.  Some of it might be in this blog already.

My psychiatrists have been saying it is a coincidence.  I am not sure how these families would feel about that.  They are saying it is a coincidence and that I have a delusional disorder.  They have been/are considering treating me under section 3 of the mental health act.  While I was telling them what was happening they were making ‘mumpy’ questioning faces at me, as if I was a child who understood nothing.

I can’t see the responsibility or the morality of making such an assessment and decision about such dense coincidences often repeated, when treating them as serious and me as reliable based on facts which have nothing to do with the creation of my brain might lead to the uncovering of terrorist and murderous gangs.  Apart from the fact that a hospital bed costs the country £700 a night, surely there must be a responsibility to take something like this seriously and investigate it properly, both for my sake and the sakes of those who are losing their lives, and to make it stop.

A few practical details which are trivial in comparison, but also relevant.  I am a vegan.  Meal times are made a battle, and were before I was a vegan, but now I am not getting adequate provision and am having to supplement what I eat with my own purchases.  There is nowhere near enough protein in what I am given to eat.  Twice I have been given a tortilla wrap with salad vegetables, yesterday I was given a carton of rice dotted with peppers and sweetcorn.  These are my concerns which do not seem to have registered.  Someone catering for a hospital should know how to cater for all diets.  You can’t chose a niche hospital as you can a restaurant, and if you are there against your wishes it adds to the distress not to have adequate nutrition and to be intensely aware of that fact.

Nurses are playing mind games with me, and so are cleaning staff.  Fixed smiles, chattering into my relaxed speech with someone else, one nurse, an MA in Art, said that until recently he thought that Malaysia was the disease and malaria was the country.  I thought he was joking but he insisted he wasn’t.  He has an MA in art so it is possible that it is true and that I should give him the benefit of the doubt.  But it doesn’t seem likely . . . .

Nurses keep saying hello and are you ok and that is as far as it goes.  Big smiles, sometimes I feel seething, but that is hard for me to say and be taken seriously.  But I feel, yes, and?  Get to the point or leave me alone.  I experience it as harassment.  People insisting that you engage in conversation in a place where you are held against your wishes and not as a criminal, and never coming to the point of what they want to say or ask, if anything.  Outside I would not have to engage in conversation with anyone I didn’t want to talk to.  Rights are presented as gifts in what might be perceived as a good conversation about something else.  I have been told I could see a dietician but it hasn’t been taken any further, and often when I have knocked on the office door they haven’t even looked up to acknowledge my presence.  I think a lot of patients get this.

The other day I was talking in the dining room about what I thought about the system and wishing people who said they hadn’t wanted the job for what they were being required to do would have the courage of their convictions and find something else, because if they don’t like doing it, they should put themselves in our place and consider how much less we like having it done to us.  My psychiatrist yesterday said that my letter to Nottingham City Homes had been full of self reference, which she says is a symptom of delusion.  I pointed out that I had had no written acknowledgment of the letters I had sent them, and she drew back a little at this.  But by self-reference she meant that I thought the violent harassment from upstairs was being aimed at me and that I was being followed and targeted in my flat, where I know we could hear each other much too well for privacy.  So it wasn’t self-referential, it was referring to behaviour which I believe was being aimed at me as harassment by others who had me in their minds.  Even if I was wrong about that it hardly matters, because the behaviour, whether aimed at me or not, was intolerable and not something I should have been expected to live with.  If I wasn’t thinking straight it is hardly surprising and it should have been dealt with as unacceptable behaviour whether it was considered targeted or not.   I was self referential in that I talked about my confusion about how I should be handling it, but to me that is a sign of honest, responsible communication, not delusion.  It worries me that people who can seize responsibility and power over me in this way can have a problem with that.  I was asking for help to process it.  I can’t see how that is delusional behaviour.  It isn’t.  I don’t think anyone I’ve learned anything from that I value would see it that way.

I’m running out of time and can’t continue much longer, though there are other points I want to highlight.

I want writing to be a pleasure and a development.  But sometimes it has to be work.  Sometimes you have to document and not just create.  I have realised I have to be something in my writing which I have never seen as a necessity, since I have not been in this position since years before I started my blog.  If I am to survive, and if I am to be honest and responsible and fulfil what I believe to be my obligations, I have to start writing like a campaigner and an activist.  I have to see myself as that in a way I haven’t before.

The fact that I have written this is not saying that I don’t trust the person that I wrote to yesterday.  It is my situation and I can’t keep asking other people for help.  I have to own it myself, and if I or others are going to say that what I have written is indecent, I have to own that also.  This is my necessary task.  Let those who will, help me.

 

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